Learning from deaths to improve lives: why England still needs a national LeDeR programme
Abstract
The National Health Service England's Learning from Lives and Deaths of People with a Learning Disability and Autistic People programme is the world's only national mortality review system for people with intellectual disability. Abandoning national mortality surveillance risks making preventable deaths less visible, with profound consequences for equity in healthcare.
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Authors: Rohit Shankar, Samuel Joseph Tromans, Jana de Villiers, Bhathika Perera, Rory Sheehan, Indermeet Sawhney, Regi Alexander, Ashok Roy, Richard A. Laugharne, Jacqui Shurlock, Vivien Cooper, Matthew Hill, Jackie O’Sullivan, Sheila C. Hollins, André Strydom
Institutions: St George's, University of London, University College London, King's College London, University of Leicester, University of Plymouth, Leicestershire Partnership NHS Trust, Hertfordshire Partnership University NHS Foundation Trust, State Board of Education, Coventry and Warwickshire Partnership NHS Trust, Parliament of United Kingdom, Cornwall Partnership NHS Foundation Trust, The Challenging Behaviour Foundation