Parliament of United Kingdom

Learning from deaths to improve lives: why England still needs a national LeDeR programme

The National Health Service England's Learning from Lives and Deaths of People with a Learning Disability and Autistic People programme is the world's only national mortality review system for people with intellectual disability. Abandoning national mortality surveillance risks m...

HiSQOL-mini: Development and Validation of a Shortened Version of the Hidradenitis Suppurativa Quality of Life (HiSQOL) Instrument

Abstract Background Hidradenitis suppurativa (HS)-specific quality of life (QOL) is one of six core domains for HS studies defined by HIdradenitis SuppuraTiva cORe outcomes set International Collaboration (HISTORIC). The 17-item Hidradenitis Suppurativa Quality of Life (HiSQOL©)...