Communicating neuropsychological assessment results: a qualitative study in Dutch memory clinic professionals

Abstract

Neuropsychological assessments (NPAs) are central to diagnosing neurodegenerative diseases and provide detailed insights into cognitive functioning and daily life. However, communicating these complex results to patients and informal caregivers is challenging. This study explores clinicians’ perspective on what, how, and why NPA results are communicated, and their potential role in disease acceptance. Two focus groups with physicians and two focus groups with psychologists were conducted. Participants were experienced clinicians working in Dutch memory clinics. Data was analysed using deductive thematic content analysis by two independent researchers. NPA results were closely integrated with other diagnostic tests and central to memory clinic disclosures. Communication thereof was tailored to patient and caregiver characteristics, with strategies aimed at enhancing understanding and managing emotional responses. Participants emphasised the importance of personalised, structured disclosures. Although clinicians viewed disease acceptance as a process occurring beyond the memory clinic, they recognised that communication during the diagnostic/neuropsychological disclosure may shape patients’ early understanding and adjustment. The NPA extends beyond diagnostics to support personalised communication. The NPA can be used to address informational needs and facilitate early understanding. Optimising how results are conveyed may improve patient understanding and enhance the quality of memory clinic care. Not applicable.