Mothers’ experiences and perspectives of online services and programs for young autistic children experiencing anxiety

Abstract

Background and aims Autistic children are at elevated risk of experiencing anxiety. However, many barriers to accessing effective mental health support exist. Online delivery may provide a solution, although little is known about the experiences of parents using online supports for their autistic child’s health and wellbeing. To inform the development of future digital anxiety interventions, this study investigated mothers’ experiences and perspectives of using online supports and services for their autistic child with co-occurring anxiety. Methods We conducted semi-structured interviews with 15 mothers of autistic children aged 4–7 years to explore their experiences and perspectives using online supports and services. Data was analyzed inductively using Template Analysis. Results We identified three themes: ‘online supports are accessible’ (Theme 1), ‘the suitability of learning and engaging online’ (Theme 2), and ‘developing relationships and connections online’ (Theme 3). Overall, mothers described how online delivery made a range of services and programs accessible and convenient. However, some noted challenges with online engagement and participation; for example, some mothers found it difficult to engage online while their child was present. Additionally, mothers reported mixed experiences with developing relationships with others online, which impacted preferences for receiving therapeutic support online for some families. Conclusions Online delivery provided an accessible option for a range of families of young autistic children experiencing anxiety symptoms. These results suggest the potential utility of delivering anxiety interventions online; however, further work is needed to design and deliver online programs that better meet families’ diverse needs.