Psychosocial interventions in childhood dementia: a call for action
Abstract
Abstract Childhood dementia (CD) is a complex, rare, often under-recognised, and incurable neurogenetic group of disorders with neuromotor-behavioural symptoms and poor survival outcomes. Despite profound impacts, CD remains neglected and underfunded compared to other paediatric diseases. Psychosocial and rehabilitation interventions, widely recognised as valuable in adult dementia, are underexplored in CD. Integrating these supports into policy, expanding research investment and formally recognising CD are critical to delivering equitable, compassionate, evidence-informed care for individuals and their families.
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Authors: Mustafa Atee, Rebecca Lloyd, Kristina L. Elvidge, Gail Hilton, Thomas Morris
Institutions: The University of Sydney, UNSW Sydney, University of Canberra, Curtin University, Edith Cowan University, New South Wales Department of Health, Parks Victoria, Dementia UK