The burden on caregivers of patients undergoing hemodialysis in a tertiary care center

Abstract

Background: Chronic kidney disease (CKD) is on the rise globally, with hemodialysis being the standard treatment until renal transplantation can be performed. Caregiver burden is the level of strain perceived by the caregiver from caring for a family member or loved one over time. Aims and Objectives: This study aimed to explore the multifaceted aspects of caregiver burden in the context of hemodialysis. The main objective was to assess the burden on caregivers of patients undergoing hemodialysis in the tertiary care center. Materials and Methods: This cross-sectional study was done among caregivers of CKD patients undergoing hemodialysis. After obtaining informed consent, the data were collected over a period of 3 months through interviews using the Zarit Burden questionnaire that delved into their personal experiences with caregiving. Statistical analysis was performed using the Statistical Package for the Social Sciences version 27.0, with P<0.05 considered significant. Variables were compared using Chi-square tests. Results: Among the 98 participants (mean age 43.2±12.99 years) (76.5% female), most were illiterate (85.7%), unemployed (55.1%), and married (78.5%), with nearly half earning under Rs. 12,444. The mean caregiver burden score was 28.14; 46.9% reported mild–moderate burden, whereas 18.3% reported moderate-severe levels. Significant statistical associations were found between burden levels and the caregiver’s occupation, relationship to the patient, living situation, and the patient’s assistance needs. Conclusion: This study confirms that most of the caregivers of patients undergoing hemodialysis are under chronic stress and burden that are directly influenced by factors such as employment, family size, severity of disease and residence with the patient.