Scleroderma Foundation

Development of Patient‐Reported Outcome Measures for Early Systemic Sclerosis Across Disease Subtypes

OBJECTIVE: Existing patient-reported outcome (PRO) measures for systemic sclerosis (SSc) have important limitations, including inadequate coverage of early disease and limited inclusion of diffuse cutaneous (dcSSc) and limited cutaneous (lcSSc) subtypes. This paper reports on the...