Sci-Tech Daresbury

How many RSEs (and related roles) does it take to change a lightbulb in a cage? How RSEs are shaping UK TRE infrastructure

RSEs and related roles are critical in building secure platforms that allow researchers to access sensitive data, such as in health and social care. The gold standard for safely providing access to this data are Trusted Research Environments (TREs), also called Secure Data Enviro...

How many RSEs (and related roles) does it take to change a lightbulb in a cage? How RSEs are shaping UK TRE infrastructure

RSEs and related roles are critical in building secure platforms that allow researchers to access sensitive data, such as in health and social care. The gold standard for safely providing access to this data are Trusted Research Environments (TREs), also called Secure Data Enviro...

Health-Related Quality of Life of Patients with Epidermolysis bullosa and Carers Using a Time Trade-Off Approach in the UK General Population to Elicit Utilities for Health Technology Assessment

Background: Epidermolysis bullosa (EB) is a complex group of rare, inherited skin disorders that blister easily, imposing substantial burden on patients and carers. There is a lack of published evidence in the UK quantifying health-related quality of life in EB patients and carer...