Patient-Centered Outcomes Research Institute

Multilevel factors associated with nonresponse to patient-reported outcome measures in routine radiation oncology care

Nonresponse to routinely collected patient-reported outcome measures (PROMs) threatens the representativeness of aggregated data. We characterized patient-, provider-, and clinic-level factors associated with PROMIS Global-10 nonresponse in routine radiation oncology care. In thi...

Development of items to assess noticeability and sun sensitivity among patients with non-segmental vitiligo

OBJECTIVES: Non-segmental vitiligo (NSV) is a chronic skin disease characterized by progressive, bilateral skin depigmentation that can impact health-related quality of life and psychosocial well-being. To assess emerging and new NSV treatments, patient-reported outcomes (PROs) t...

Methodology standards for usual care as a comparator in patient centred, comparative, clinical effectiveness research

Research studies leveraging usual care comparator groups have the potential to produce valuable evidence about current clinical practice and substantially improve clinical care delivery and patient health outcomes. The lack of consensus methods to define usual care comparators in...