Newcastle upon Tyne Hospital

Cutaneous Lymphoma International Prognostic Index and Risk Stratification in Advanced Mycosis Fungoides and Sézary Syndrome

Importance Risk stratification in advanced mycosis fungoides and Sézary syndrome (MF/SS) remains suboptimal given that current TNMB (tumor, node, metastasis, blood) staging has limited prognostic value for clinically relevant outcomes. Objective To determine whether the Cutaneous...

A qualitative exploration of information access and provision for cancer survivors experiencing chronic bowel symptoms after pelvic radiotherapy: informing a framework to guide improvements to information provision

Abstract Purpose For people living with and beyond cancer, access to clear, accurate, relevant information is crucial for meaningful participation in shared decision-making and is associated with better quality-of-life. Many cancer patients who undergo pelvic radiation experience...

Patient and Public Involvement and Engagement (PPIE) in methodological research: exploring challenges, tensions and learning from the perspectives of PPIE and researchers in the Realist Economic Evaluation Methods (REEM) study

Abstract Background Methodological research is often abstract, heavily theoretical and jargon laden. Despite having significant implications for the users of health and social care services, it can be difficult to involve the public and patients in research that is oriented towar...

Impossible practices: on the ideology of codesign

Codesign is widely framed as a democratic and inclusive practice, particularly in development-sector contexts where it is invoked as a way of ensuring that those affected by design have a voice in shaping decisions that concern them. Yet designers frequently encounter tensions be...