Cicely Saunders International

Quantifying care provided to children and young people with cancer who die: Estimating the costs and key determining factors of NHS secondary care in England

Background Little is known about hospital use, costs, and factors associated with higher costs in end-of-life care for children and young people with cancer who die. Methods This is a retrospective death-outcome defined cohort study. It included 4,247 children and young people ag...

From Concept to Multicentre Trial: The Central Role of Patient and Public Involvement and Engagement (PPIE) in Developing and Testing SELF-BREATHE, a Digital Intervention for Chronic Breathlessness

Extract Chronic breathlessness is a debilitating symptom experienced by people with advanced respiratory disease. Despite its high prevalence, access to specialist-led structured breathlessness support across the UK and internationally remains inconsistent [1, 2], due to geograph...

Involving People With Dementia in Research: Contributions, Barriers and Evaluation From a Meta‐Synthesis and Qualitative Interview Study

BACKGROUND: Patient and Public Involvement and Engagement (PPIE) can enhance the relevance, acceptability and quality of research; however, its meaningful implementation in dementia research remains insufficiently understood. AIM: (1) To identify methodological procedures for inv...

From six to twelve months: how extending the statutory prognostic threshold affected fast‑tracked end-of-life benefit access in England and Wales

Abstract Background To evaluate the impact of the 2022 change in prognostic eligibility criteria for the Special Rules for End of Life (SREL) pathway, from an expected death within 6 months to within 12 months, on the number and characteristics of awardees for fast-tracked financ...