Yvonne Kellar‐Guenther

Long-Term Follow-Up for Newborn Screening: A Roadmap and Guide With Programmatic Considerations

Long-term follow-up (LTFU) systems for newborn screening (NBS) are essential for evaluating access to care, outcomes, and treatment barriers. Following screening, infants with confirmed diagnoses are followed by care providers, but local, state, and national systems to assess out...