Maartje Mangelaars

Understanding the Lived Experience of Fetal and Neonatal Alloimmune Thrombocytopenia: A Qualitative Study

Objective Fetal and neonatal alloimmune thrombocytopenia (FNAIT) is a rare alloimmune disease of pregnancy. This study aimed to better understand the disease burden of FNAIT and its impact on families through qualitative research. Study Design This exploratory, qualitative study...

Patient perspectives from the BEYOND Delphi panel: burden of remaining symptoms and their fluctuations, despite treatment, in patients with generalised myasthenia gravis

Abstract Background Patients with generalised myasthenia gravis (gMG) can experience remaining symptoms despite treatment. Our study aimed to describe how remaining symptoms and their fluctuations may affect a person’s daily life while living with gMG. Methods A modified-Delphi p...