Chiara Provasi

The QOLA study: psychometric validation of the Quality of Life of Parents of Children with Achondroplasia (QOLA) questionnaire - a multinational study in Germany, Italy, and Portugal

Abstract Background Parents of children with achondroplasia experience multidimensional impacts on quality of life (QoL), yet validated condition-specific instruments for assessing these outcomes across countries are scarce. This study evaluated the psychometric properties of the...